click on run, walk & roll logo for event details


Jacob's Run, Walk & Roll to Cure SMA 2008 raised $110,500!!!!! thank you all so much for making the day a huge success! there was an amazing turnout and everyone had a great time! we are always amazed at how many lives jacob continues to touch. we are so grateful for our generous and compassionate supporters. check out our beautiful slideshow created by our event photographer, sharon morgenstern. also, save the date for next year's walk, march 22, 2009!

also...

the carl lawerence vanderveen concert raised over $2,500 this year for jacob's foundation! we truly can't believe how amazing carl's family is and how much they do to support jacob's foundation. we are sure that jacob and carl are playing together, and are very proud of the vanderveen family! eric and karen- although we have never met, we love you so much and we simply aren't able to express our gratitude with words.

this summer, our family attended the families of sma annual conference in chicago. our foundation presented fsma with a check for $110,000! of that donation, $50,000 was allocated to further drug discovery; $50,000 was designated to begin funding for a clinical trial site for type 1 patients in the southeast; and $10,000 was designated to stem cell research. on december 27, 2007 (jacob's sixth birthday), the foundation contributed another $6,000 to stem cell research. the donations allocated to stem cell research were both matched by another generous organization. thank you for making our foundation an integral part of the progress toward finding a cure! we owe our success to our supporters and we are so grateful!

now donations can be made online via paypal to jacob's foundation! it is so easy to use! simply click on 'make a donation' and it will lead you through some easy steps.

we have also been continuing to fund and organize our own support programs of sending packages and dinners to sma families. we have sent more than 85 families packages or dinners and provided scholarships for 100 adults to attend fsma conferences in the past five years. thank you for helping us to make a difference and for continuing to support us. we are growing and educating more people each day.

we are always amazed at how our jacob, whose life was so brief, continues to touch so many people. we are making a difference and we know that jacob must be proud!

and...

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on february 17th, 2006 our family welcomed the newest rappoport- samuel red. sam is SMA-FREE and doing well!!!!!

on january 30th, 2004, jacob became a big brother! max sawyer rappoport weighed in at 8lbs, 1 oz and was 21 inches long. max is named after bryan "sawyer" smith, who died of sma two weeks before jacob did. sawyer's parents, amy and jason smith, were an incredible source of support and love during jacob's life, and now still. mommy, aba and jordan are enjoying every minute with our newest addition, and we are so grateful to jacob for sending us such a special boy.